Social Icons

Wednesday, January 9, 2013

A Minor Roadblock

A few weeks ago Cliff's cardiac surgeon did a catheter of Cliff's heart where we found out Cliff's pulmonary stenosis was getting worse.  His pulmonary arteries are still the size that they were when he was born even though he is now 9 months old.  The effect is like attaching 3 garden hoses to a fire hydrant.  The water flows but under incredibly high pressure.  Ultimately that pressure makes Cliff's condition unsustainable long term without some kind of intervention.

With future surgeries on the near horizon our doctors have all recommended putting in the g-tube so that Clif would have an easier time getting nutrition after surgery.  It seemed like it took Cliff a week or two to bounce back after the heart catheter.  Perhaps some of that was because having the ng-tube in his throat was causing some difficulty.  But it also seemed as though Cliff had a rough time with congestion

That seems to be our biggest concern at the immediate moment. Cliff is just so congested that we worry about him not being able to even undergo the g-tube procedure on Monday.  With Teri having just had bronchitis last week we didn't want to take any extra risks tonight so Teri took Cliff down to the Phoenix Children's Urgent Care to get him looked at because his breathing and wheezing has gotten worse. The trouble is that it is very difficult to determine if Cliff is having trouble because of the complications from his heart or if it is just chest congestion.  Cliff is headed for the cardiologist tomorrow so hopefully they will be able to give us a bit more insight.  And hopefully this congestion goes away sufficiently that Cliff can get his g-tube in on Monday.  Here's to hope.


Post a Comment


Huge Thanks

We are so grateful for all the wonderful people who have helped us, are are helping us through this experience.

Our families have been great support systems for us and have given so much of their time and their talents to benefit Cliff.

We also have so many good friends who have given way more than we could have possibly imagined, sometimes a moment's notice.

To everyone we offer a heartfelt thanks! We really, truly could not do this without you.

An Inspiring Thought

Here's one quote that inspires us.
"There is no growth in the comfort zone; there is no comfort in the growth zone."
If I could figure out who to attribute this to I would, but the Internet isn't quite sure who said it.

Contact us

Need to get a hold of us? Have a question? Want to talk about how the Tottenham Hotspurs are doing? No Problem!

Just email us at